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Quality of Life

I'll Be Deserving of a life dictated by me, not IBD.

Your Quality of Life Journey

Start your Quality of Life Journey to rethink how you're coping with IBD, learn more about the effects of IBD and what it means to live well, and explore tips and resources for coping. Answer some eye-opening questions along your journey, and you'll receive your Life Coach badge plus a Quality of Life Discussion Guide that can help you and your doctor take charge of IBD today!

By the end of your journey, we hope you'll be deserving of a life dictated by you, not IBD.

start journey

Why Take Charge of IBD?

Inflammatory bowel diseases (IBD) can have a significant physical impact on individuals living with the condition.

The good news is, with the right IBD management plan and support system, you can take charge of IBD and focus on living the life you deserve.

Benefits of taking charge

Taking charge of IBD may help you:

  • Get through each day a little bit easier
  • Improve your emotional wellness
  • Feel more comfortable in social situations
  • Improve your self-esteem
  • Feel less stressed and frustrated
  • Enjoy intimacy with your loved one
  • Better manage flare-ups
  • Reduce your financial stress

Risks of not  taking charge

Not taking charge of IBD may lead to:

  • Frequently experiencing more challenging days
  • Emotional distress, possibly even depression
  • Uncomfortable social situations and missed social events
  • Lower self-esteem
  • Elevated stress and frustration levels
  • Intimacy issues
  • Inability to manage flare-ups effectively
  • More financial stress

Question 1 of 6

Do your IBD symptoms interfere with your daily responsibilities or tasks?
(e.g., frequent bathroom breaks or absences at work or school, distraction due to painful flare-ups)

Always
Often
Sometimes
Never

The best way to cope with IBD is to seek effective treatment. Work with your doctor to create a treatment plan that’s right for you. If you’re not satisfied with your current treatment, talk to your doctor about other options.

Question 2 of 6

How does IBD make you feel emotionally/mentally?
(Check all that apply.)

Isolated   Sad   Stressed None of the above
Embarrassed   Depressed   Anxious
Helpless   Frustrated   Overwhelmed
Guilty   Angry   I don't let IBD get me down  

It's important to understand that these feelings are perfectly normal. And the better you can manage your IBD symptoms, the better you'll be able to cope with these feelings.

Keep going. You're on your way to getting your  Life Coach badge and discussion guide!

Question 3 of 6

How does IBD affect your relationships?
(Check all that apply.)

I've distanced myself from family or friends
I find myself avoiding coworkers, and even social and professional opportunities at work or school
I can't be as intimate as I'd like to be with my loved one
I have to miss out on some of my kids' activities
My family feels helpless; they don't know how to support me
Sometimes the pain and frustration of IBD is overwhelming, and I take it out on my family
IBD has made my relationships stronger
None of the above

Question 4 of 6

To avoid public embarrassment and uncomfortable situations, you often:
(Check all that apply.)

Avoid going out   Skip meals to avoid symptoms
Decline social invitations   Plan an "escape" in case a flare hits
Map out the nearest public restrooms   Avoid traveling
Carry an extra change of clothes   I don't get embarrassed by my IBD
None of the above  

It's inevitable that at some point, you'll have flare-ups while you're away from home. But that doesn't have to stop you from living your life. Talk to your doctor about your treatment options. And for peace of mind, be prepared before heading out for the day or traveling.

Question 5 of 6

Where have you turned to for support in coping with IBD?

 
Doctor   Online support communities
Therapist   Family and friends
Local support groups   I'm not seeking support for coping with IBD
Other

One more question to get your  Life Coach badge and discussion guide!

Question 6 of 6

Starting today, what will you do to help control symptoms and take charge of IBD?
(Check all that apply.)

Talk to my doctor about a treatment plan that helps me better manage my IBD symptoms
Educate my family and friends about IBD so they better understand what I'm going through and how to support me
Seek support from a therapist
Join a local support group
Join the CCFA Community to learn more about living well with IBD, and to connect with people like me
Become an advocate for myself and others living with IBD

Results

get Life Coach Badge

Congratulations!

You finished the Quality of Life Journey and earned your Life Coach badge. To save your badge in your profile, please log in or register.

Get involved in CCFA programs and advocacy opportunities.

I Earned the Life Coach Badge
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Be Inspired. Inspire Others.

Earn your badges, then share your experience with others living with IBD.